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Elizabeth P.

How does digital health support patients/caregivers to become more active participants in their health care?

Confidence that health information is up to date. Ready access by the patient to their records.

Share an experience where digital health had an impact, or could have had an impact, on you as a patient, caregiver or family member.

The improper sharing and access of my mental health information stopped me seeking counseling in my small isolated town.

The theme of the 2016 Infoway Partnership Conference is “A Conversation About Digital Health”. How do you believe you can contribute to the conversation?

I live in a very small town. No one has a ‘family doctor’ but a walk-in clinic model. How privacy rights for EMR’s are allowed, implemented, monitored and actioned never gets talked about. What the public hears is ‘we take your privacy seriously’ and other blanket statements. After my mental health info was shared without my permission with a 3rd party I tried to set restrictions that I am allowed under the Health Act, was refused by admin because their EMR can’t meet privacy restrictions.

How will you apply and share what you learn from Digital Health Week and the 2016 Infoway Partnership Conference?

I would like to be able to trust health care employees with my confidential information and help them understand how to responsibly share information in my EMR. Today that task is only in the hands of office staff and administrators. When I talk to doctors about privacy and the EMR they don’t feel that is something that involves them, that I should only be talking to them about my health needs, not privacy of my information. There’s this assumption that doctors are trusted automatically with information.