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Jolaine C.

How does digital health support patients/caregivers to become more active participants in their health care?

Digital health provides a broadening horizon by which patients can personally manage and improve their health through an array of apps, monitors, and medical imaging CDs. Smartphone apps can perform ECGs. Wrist monitors can track calories, heart rates, and other fitness parameters. Patients can effectively monitor sleep patterns and oxygen saturation levels. Digital health allows patients to be interactive partners with their medical professionals by providing important health information.

Share an experience where digital health had an impact, or could have had an impact, on you as a patient, caregiver or family member.

I have an iatrogenic illness. Unfortunately, 80% of patients who are victims of a medical error die because of the denial of necessary treatment. Medical professionals and associations are working diligently to provide safer standards, but to date there are no venues to help these patients. They continue to die, often needlessly. Digital health helps provide the vital information for medical management for patients such as myself that is not available elsewhere.

The theme of the 2016 Infoway Partnership Conference is “A Conversation About Digital Health”. How do you believe you can contribute to the conversation?

The fate of the victims of medical error should no longer be the silent travesty we refuse to acknowledge. By doing so, we continue to promote and accept the denial of care to these tragic individuals and their anguished families who must watch helplessly as their loved ones suffer. My contribution would be to explain how digital health can help bridge this abyss and provide a venue for medical care for patients with iatrogenic illnesses. This conference would provide a valued opportunity.

How will you apply and share what you learn from Digital Health Week and the 2016 Infoway Partnership Conference?

I am active in the Patients Voices Network. I also write. I am presently preparing a substantial report on my use of digital health to improve and manage my health care that relates directly to my iatrogenic illness. This report will be presented to several provincial associations and will be available to all members of the public. I am confident that at the conference I will learn more about digital health that will be applicable to this presentation and will benefit those that read it.