Kathy K.

How does digital health support patients/caregivers to become more active participants in their health care?

  • Often what patients/caregiver needs to become more active, and what the ‘connected communities of interest’ can provide
  • Confidence – validating experiences
  • Courage – you do have the power to become more involved, in control
  • Content and context – learning medical terminology eg on lab reports
  • Platforms such as twitter and facebook and virtual communities such as Canadian Virtual Hospice can also combat loneliness and isolation, often an issue for patients/caregivers/families

Share an experience where digital health had an impact, or could have had an impact, on you as a patient, caregiver or family member.

  • Dental xrays emailed to another provider
  • Connectivity within same hospital system so different departments have same/consistent info
  • MyChart at Sunnybrook – providers across the world who are given access (by me) have all my info and lab reports = plus, I can upload anything else
  • Email pix of skin concern to derm
  • BestEndings.com eval by patients of Women’s College Hospital Family Doc proved valuable for
    facilitating end of life conversations
  • My 10-sec MedSchool(YouTube)– Meds Admin confusion

The theme of the 2016 Infoway Partnership Conference is “A Conversation About Digital Health”. How do you believe you can contribute to the conversation?

  • Sharing concrete examples of how digital health has been my ‘Palliative Care/End of Life’ 101
    through Grad School
  • Share empowerment experiences as an invited ePatient – to Stanford’s MedicineX, Health 2.0,
    Patients 2.0, #hcsmca Symposium, California Coalition for Compassionate Care, and how that has lead to encouraging other patients/caregivers via digital connectivity

How will you apply and share what you learn from Digital Health Week and the 2016 Infoway Partnership Conference?

  • Blog about what I’ve learned, and share through my digital networks