How does digital health support patients/caregivers to become more active participants in their health care?
- Often what patients/caregiver needs to become more active, and what the ‘connected communities of interest’ can provide
- Confidence – validating experiences
- Courage – you do have the power to become more involved, in control
- Content and context – learning medical terminology eg on lab reports
- Platforms such as twitter and facebook and virtual communities such as Canadian Virtual Hospice can also combat loneliness and isolation, often an issue for patients/caregivers/families
Share an experience where digital health had an impact, or could have had an impact, on you as a patient, caregiver or family member.
- Dental xrays emailed to another provider
- Connectivity within same hospital system so different departments have same/consistent info
- MyChart at Sunnybrook – providers across the world who are given access (by me) have all my info and lab reports = plus, I can upload anything else
- Email pix of skin concern to derm
- BestEndings.com eval by patients of Women’s College Hospital Family Doc proved valuable for
facilitating end of life conversations
- My 10-sec MedSchool(YouTube)– Meds Admin confusion
The theme of the 2016 Infoway Partnership Conference is “A Conversation About Digital Health”. How do you believe you can contribute to the conversation?
- Sharing concrete examples of how digital health has been my ‘Palliative Care/End of Life’ 101
through Grad School
- Share empowerment experiences as an invited ePatient – to Stanford’s MedicineX, Health 2.0,
Patients 2.0, #hcsmca Symposium, California Coalition for Compassionate Care, and how that has lead to encouraging other patients/caregivers via digital connectivity
How will you apply and share what you learn from Digital Health Week and the 2016 Infoway Partnership Conference?
- Blog about what I’ve learned, and share through my digital networks