How does digital health support patients/caregivers to become more active participants in their health care?
Digital health gives patients more control and access to their health records. It is especially important for patients living with chronic, long term conditions. They are better able to monitor their health and assess when they might start having difficulties perhaps even avoiding setbacks in their health status.
Share an experience where digital health had an impact, or could have had an impact, on you as a patient, caregiver or family member.
Unfortunately I live in a province that has been dragging behind in the area of digital health. As a patient who has been involved in national organizations I have seen the benefits elsewhere in the country but not in NB. I have been living with Rheumatoid Arthritis for over thirty years and would love to be able to save time at appointments by accessing an electronic health record and to be able to engage electronically with my health care providers prior to each visit.
The theme of the 2016 Infoway Partnership Conference is “A Conversation About Digital Health”. How do you believe you can contribute to the conversation?
I am president of a national patient organization, The Canadian Arthritis Patient Alliance (CAPA), www.arthritispatient.ca, are active on social media and very engaged in the dialogue around e-health. It is important to hear from regions of the country that are lagging behind and discuss ways to improve access to digital health technologies.
How will you apply and share what you learn from Digital Health Week and the 2016 Infoway Partnership Conference?
CAPA has an active Facebook page and Twitter account. We publish a quarterly newsletter and I will share what I learn at the conference.